Tuesday, November 17, 2009

San Diego fun

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They're back safe, sound and happy. Good times in San Diego with Mo's sissies.

Saturday, November 7, 2009

Bachelor days

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Globe-trotting Hope is at it again, flying to San Diego early this morning with Mom and her Aunt Annie for five days with Aunt Molly -- or as I call her, Dirtbag. Lulu and I are holding down the fort, raking leaves, ripping apart the bathroom, eating frozen pizzas and generally having unsatisfying, one-sided conversations.

It's been about 13 hours and I already miss my ladies. It's terribly lame, but the cycle repeats itself: Count the days until sweet bachelor freedom; feel sad for at the airport, sing a song of emancipation and return home, look around, realize it's awfully quiet and begin to re-shingle the roof. If this keeps up, I may have the foundation of the house up on jacks tomorrow.

I probably sound like a dullard, but Hope has been even more of a joy lately. If something isn't bothering her -- and she lets us know when it is -- she's one happy kid. It's a cliche, but that's all we can ask. And her joy is infectious. It's hard to be in a bad mood around Hope.

Mo always dogs me for writing long and skimping on facts, so here are some:

  • To our surprise, Hope has done well with her new pink spectacles. She's much more engaged and only whips them off when something is bothering her or feeling neglected.

  • Hope took to a fancy, schmancy new gait trainer the Intermediate School District let us borrow. It had a long handle so we could help her steer without breaking our backs, like her current loaner. She made repeated circuits and giggled all the way, like her heifer won top prize at the county fair. That's the good news. The bad news is we had it for four days on loan to see if she liked it before ordering it through supplemental insurance. That could take three months. So it's back to the low-tech red walker and more Ben Gay for our backs.

  • We're switching cardiologists. We had to cancel Hope's annual check-up to monitor her narrow aorta because we were Up North. We like our cardiologist a lot, but are thinking about switching HMO networks to a children's hospital.
  • I'm going to try to be better with the blog. It's gotten away from us for a while, but I'm feeling recharged for the moment.

  • Thursday, November 5, 2009

    A new do at two

    Like others with CdLS, Hope has hair issues. Sure, her locks are adorable, but they don't always cooperate. For months last year, Hope sported a faux-hawk worthy of Glenn Danzig or other punkie poos. She gets her color from her mother's side and her fly-away, instant hat head from mine.


    Lately, we've tried to solve some of the issues with hair bows. But Hope likes to eat those. We've tried bands, pigtails and jaunty caps. Eventually, she tires of dress-up and yanks them off. Over the months, Mo has tried to trim Hope's hair with mixed success. Once, a friend from overseas did a do for Hope worthy of Oooh-La-La Sassoon.


    Mostly, though, we've washed it, combed it and hoped for the best. This week, we did what we should have done months ago: Taken her to a salon and done her up right.



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    Monday, November 2, 2009

    Party people, unite

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    With all due respect to those lucky kids born on Arbor Day or Feast of Our Lady of Guadalupe, Hope still has you suckers beat. For our money, no birthday is more fun than Halloween, and we did it up again this weekend.

    Continuing a tradition of future humiliation that began last year when we dressed Hope up as a turkey, she was a ladybug this year. For the uninitiated, a ladybug costume is a lot like a turkey one, only it's a big red sack with red dots rather than a big brown sack with feathers.

    No matter, she the envy of the aphid colony, getting gussied up after a hard day of pumpkin carving. We had every good intention of trick or treating this year, but the weather was cold, the porch railing beckoned and Hope is accursed with lame parents. We had planned on hitting a few houses, but instead stuck to custom and sat on the porch and doled out Almond Joy, Baby Ruth and Big Boy coupons to all comers. We feel a bit guilty that we punked out, but rationalized that Hope couldn't eat any candy besides lollipops. Next year, we promised.

    Sunday we partied like Norse Gods, eating Elmo cake, ate ghoulishly themed food prepared by Mo (Mmm. Mmmm. I love me some Zombie Fingers, but wish I didn't have to pick around the green olives of the Eyeballs of the Undead) and played Mo's all-time favorite game, Pass the Pumpkin. It's a lot like Musical Chairs in that it involves music, flying elbows, bruised egos and lots of arguments. Somehow, the party acquired an Elmo theme. Like a lot of new-ish parents, our qualms about embracing rampant commercialism gave way to wanting to make happy our girl who loves the Tickle Me Kid.

    All in all, we whooped it up like we were at Greek Row in an archetypical Big 10 School. It's tough to believe sometimes that Hope is 2. Some days, it seems like forever. Others, it seems right. But it's a great milestone to chart progress. Last year, Hope wasn't even sitting up. Now, she's cruising like a big girl in a loaner walker and seems more like a toddler every day.

    Next year, we hope she's walking for real.

    Monday, October 12, 2009

    Walk for Will and Hope


    The weather was swell. The cause, worthy. The company, wonderful.


    Under cool but crisp skies, about 75 kindly souls trekked 2 miles Sunday for the First Annual Walk for Will and Hope. We're proud to report we smashed our fundraising goal and raised nearly $5,000 for the Cornelia de Lange Foundation. We're absolutely tickled and humbled by the response.

    All credit goes to Big Mo. This was her dream and goal for the five years after Will died, so we were honored and grateful to host the walk four days before what would have been his fifth birthday. Mo sweat the details, wrangling insurance, designing T shirts, coordinating refreshments, charting the course, navigating surprisingly cumbersome park bureaucracy and cajoling donations from near and far.

    My job was mostly comic relief and doing as told. As such, I'm updating the blog as she enjoys a well-deserved lounge, Cheez-Its and "Dancing with the Stars."

    We are terrifically appreciative and have so many people to thank. The response bowled us over and we're lucky to have such great friends and family to come out and support a cause that means a lot. There's a video yet to come with some highlights, but right now, we're just basking in the glow and preparing to write thank-you notes.

    So thanks to all. It was terrific.




















    Saturday, October 10, 2009

    They're here....



    Two months and four optometry office visits later, Hope FINALLY has her first pair of glasses. As you can sort of tell from the pictures, they're pink wire frames with cable arms that wrap around her ears and a rather large plastic thing called a universal bridge. They're a little big but I think we did the best we could given Hope's small head and features. I went to four different places -- two of which had to order special frames for us to even try on -- before we found these on Tuesday and I decided to go with it. They arrived yesterday.


    So far, Hopesy is actually doing pretty well with them! She kept her head down for the 15 minutes she had them on yesterday, as if they were heavy. Today, she's doing much better. Apparently this seeing stuff isn't so bad.

    But some sights, as you can tell from the picture below, are good no matter whether you can see them clearly or not -- like Hope's thumbs. She's been fascinated with her hands, and particularly her thumbs, for about a month now.




    Thursday, September 24, 2009

    Back to Higgins


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    We have steadfastly resisted the buzzword of the recession: The loathsome staycation.

    We work too hard and our cat annoys us too much to even consider the pitter-putter, dilly-dally, couch-potato siren call of lazing around home for a week, watching "Gilmore Girls" reruns until we can predict their oh-so-clever-banter, occasionally trekking to places we've already been a gazillion times and looking out the window and staring at that taunting bent nail keeping our storm drains in place, begging to be fixed.

    So it was off yet again to the poor-man's time-share, our rent-free and oh-so-scenic home away from home, Mo's parents place on Higgins Lake in northern Michigan. The leaves had changed, the tourists had fled and the wooded trails nearby practically inviting Lulu to poop on them.

    As usual, we had a grand time: Boating, eating much dip, sitting in the sands, introducing Hope to the wonder that is acorns and strolling through the tranquil woods, the gentle song of the swaying branches punctuated only by our calls of No, Lulu! No, No! Stop!

    Chasing our bliss, we made like college freshmen and skipped Hope's first week of school. What the hay: It was registration week anyway. She begins in earnest next week, receiving her therapy schedule today. Unlike party-boy freshmen, Hope has scheduled school before 11 AM, with both sessions starting before 9:30 AM. That's bad for any dreams of marathon keg-stands, but good for dear ol' Dad: This year, I can make them.

    Hope is doing great stuff. It's nifty to return around the same time each year to Higgins Lake because we can better visualize her progress.

    Last year, she couldn't sit on her own. This year, she not only sits, but spins in circles and has devised her own, quite ladylike, method of getting around by sitting spread-eagle, throwing her arms to the floor and pulling her to heart's content. Over Memorial Day, we were delighted when she took four tentative cruising steps next to a chair. Now, she's skipping from the chair to the bookshelf to the coffee table to the end table and onto the wall, a la Sylvester Stalone in "Cliffhanger." Last year, she could barely fit in the Snugglie. Now, she loves it.

    It's fun to look at photos from then and now to remind ourselves how she's become such a little girl while we weren't noticing. Of course, I could have made a video comparing and contrasting. That would make a lot of sense. Instead, I made one about hypnosis. Go figure.